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22nd Alaska State Legislature
Information from Representative Con Bunde



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State Capitol, Room 501
Juneau, AK 99801-1182
Toll Free: (800) 892-4843
Phone: (907) 465-4843
Fax: (907) 465-3871
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District 18 & Education Committee Info

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716 W 4th Avenue, Suite 410
Anchorage, AK 99501-2133
Phone: (907) 269-0181
Fax: (907) 269-0184

Legislative Update 10-09-02
Organ and Tissue Donation

Released: October 9, 2002
Contact: Representative Con Bunde at (907) 269-0181 or (800) 892-4843

Dear Neighbors:

U.S. Department of Health and Human Services Tommy Thompson has an initiative to increase organ and tissue donation across the country. His public awareness initiative has increased donations nationwide by 7%, and by 13% in minority communities. Secretary Thompson and I have worked together for several years on health issues, and I know he feels as strongly as I do about the urgent need for more organ and tissue donors nationwide. But there's only so much someone can say about this important topic unless they've been touched by it personally.

For example, I could tell you:

  • More than 80,000 men, women, and children are waiting for an organ transplant nationwide.
  • While about 66 people receive a transplant each day, another 17 people on the waiting list die because not enough organs are available.
  • Here in Alaska, the most recent data available says there are 85 Alaskans waiting for an organ transplant, and another 25 waiting for tissue (bone, tendon, skin, heart valve or cornea).
  • Since 1992, organ transplants have saved 296 Alaskans’ lives and 4,100 more have received tissue transplants.
  • However, the terrible news is that according to available data, at least 55 Alaskans have died waiting for organ transplants in the same time period and that number may be two to three times higher.

Those are dry statistics, and hard to relate to our own lives. What do those numbers mean? I asked one of my staff to help me relate to the numbers. She wrote the following.

When I was living and teaching back east, a friend of mine was waiting for a liver transplant. He was yellow and skinny, and always had a portable phone with him, but he seemed fine. I didn't know him very well, but I knew he came from Alaska. In 1992, a bunch of us friends gathered for our annual Thanksgiving dinner. I hadn't seen Steve for a while, but he was there. His appearance was frightening. I had never seen anyone just concentrate on staying alive before. But there he was, determined to share Thanksgiving with his friends and his Mom, who had moved down from Fairbanks to help him.

A few days later, on December 2nd, we learned that Steve had "gotten the liver." We all cheered, knowing that he would have died very soon without a transplant. We grieved for the family who lost a loved one between Thanksgiving and Christmas and silently thanked them for their incredibly generous gift. We prayed for Steve's recovery and were thrilled when he was released from the hospital on Christmas Day and came back to bowling night in January.

I married Steve in April 1994, and in 1996 we moved back to Alaska. An archivist, he is now the State Records Manager at the State Archives. He works to ensure that important state documents are preserved and available to the public.

There's not a day that goes by that he and I don’t think of the parents of that young man. Steve wrote to them the day before our wedding, thanking them for their gift and telling them what they had made possible. On the worst day of their lives, a social worker came to them in a waiting room and asked if they would like to donate their son's organs and tissues. On the worst day of their lives, they, like so many relatives in Alaska and across the country, said they knew that's what their son would have wanted.

Please, talk to your family about your wishes concerning organ donation.

From Life Alaska, our state's organ and tissue donation organization, comes this story.

Fifty-five is just a number. But to those fifty-five families whose loved ones died waiting for a life-saving liver, heart, or other organ, it means so much more. One of the fifty-five is Sean Roth. Sean was a little boy who loved dinosaurs and talked to his mom of his dream of being able to ride a bike by himself. Four-year old Sean had a disease called pulmonary hypertension where the pressure in the lungs was too great, so his heart wore out. Sean and his mom and his favorite dinosaur moved to the Ronald McDonald house in Los Angeles to wait for the gift off a heart-lung donation that did not come in time. Sean died in his mother's arms at the Ronald McDonald House on December 20, 1998. This little boy who never got his wish to ride a bike himself then gave the greatest gift of sight to two people through corneal donation.

There are fifty-five stories like this with the Alaskans who have died waiting. There are currently eighty-five families from Alaska hoping to have a different and happier story to tell. If someone such as Sean could give such a magical gift, won't you?

Alaska has one of the highest rates of organ and tissue donation in the country. That's not surprising, given our tradition of helping our neighbors in times of crisis. Nevertheless, we need to keep reminding ourselves, and our families, of the many Alaskans who are waiting for the gift of life right now, and those who will wait in the future.

If you have questions about organ and/or tissue donation, I urge you to go to the U.S. Department of Health & Human Services’ website on organ donation at http://organdonor.gov/faq.html. Alaska’s organ and tissue donation organization, Life Alaska, can also provide information. Their website address is http://www.lifealaska.org/. And please, talk to your family about your wishes concerning organ donation, because they will make the final decision regardless of whether you have an organ donation sticker on your driver's license.

I hope at least some of this information is useful to you. As always, if you have any questions, concerns, or suggestions, please get in touch with me.

Thanks,

# # #

All addresses are "blind" for your privacy. A strict "no spam" policy is observed. If you don’t wish to receive "Legislative Update", just let me know. If you know a friend or neighbor in District 18 who has not received "Legislative Update" but would like to be included, I will be glad to include them if they contact me. Your replies, comments, questions, and/or suggestions are welcome. Constituent comments on legislation and policy issues may be tabulated, shared with other legislators, or quoted in speeches. Names, however, will be kept private.

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